070701Bush Weighs Stem Cell Decision Amid Reminders of Suffering
       
            KENNEBUNKPORT, Me., July 7 — As President Bush inches closer to a 
            decision about federal support for embryonic stem cell research, he 
            is surrounded by reminders — in Republican circles, in his White 
            House and even in his family's past — of the lives diminished by 
            afflictions that the research might help fight.
            A sister, Robin, died of leukemia at age 3. The Republican Party's 
            most beloved living hero, former President Ronald Reagan, is wasting 
            away with Alzheimer's disease.
            And the father of Andrew H. Card Jr., Mr. Bush's chief of staff, 
            battled Parkinson's disease for years until his death in 1994. Mr. 
            Card's mother developed Alzheimer's and died late last year. 
            Parkinson's and Alzheimer's are among the diseases for which 
            treatment could perhaps be advanced the most by the research.
            Several people who know Mr. Card, including two administration 
            officials, said his father's experience helped shape his view about 
            research using cells from human embryos, which they said he favored. 
            One official said he was certain that Mr. Card, who was at some of 
            the president's White House discussions about the issue, had shared 
            his feelings with the president.
            But other officials and Bush advisers outside the White House said 
            that Mr. Card had largely kept his feelings to himself. Mr. Card, 
            through a White House spokesman, declined a request for an 
interview.
            Mr. Card's family story, like Mr. Reagan's illness and many other 
            examples of suffering in Mr. Bush's immediate and extended circles, 
            underscores the deeply personal nature of the debate over federal 
            support for the research. It also suggests that Mr. Bush's 
            deliberations, no matter what decision they yield, are being 
            influenced by more than political ideology and abstract morality.
            "It's one of the things that makes it so difficult," one of Mr. 
            Bush's aides said. Like other aides, this one said the White House 
            had been bombarded by passionate pleas from people arguing for or 
            against the research — and that the issue had been the most volatile 
            one Mr. Bush had encountered since taking office.
            But in this case, the official said, the appeals are coming not just 
            from advocates on each side of the issue. They are sometimes coming 
            from friends or acquaintances who have watched someone suffer from 
            Parkinson's disease, Huntington's disease, juvenile diabetes or a 
            number of other illnesses, and who have become fervent proponents of 
            the research for that reason.
            "There has been an awful lot of traffic on this — tons," the aide 
            said.
            Daniel Perry, the executive director of the Alliance for Aging 
            Research, an advocacy group that supports research using embryonic 
            stem cells, said that one member of his organization's board was 
            friendly with Vice President Dick Cheney and went fishing with Mr. 
            Cheney in Montana a month ago. The board member, whom Mr. Perry 
            would not identify by name, used the opportunity to make his case 
            for the research.
            Mr. Cheney "got an earful," Mr. Perry said.
            Kenneth M. Duberstein, a chief of staff for Mr. Reagan, has made it 
            publicly clear — and thus clear to Mr. Bush — that many of Mr. 
            Reagan's advisers and friends want the research to go forward.
            Mr. Duberstein's comments also seemed to signal to Mr. Bush that 
            invoking Mr. Reagan's name would be a wise and effective way to 
            explain a decision to permit the research to religious 
            conservatives, many of whom oppose it but revere the former 
            president.
            "It's not a political decision," Mr. Duberstein said. "It's the 
            right decision. This could make a difference for many people 
            bedeviled by the same disease as our beloved Ronald Reagan. Old 
            Reagan hands would applaud."
            These sorts of testimonials and points of reference have made a 
            decision more difficult and complicated for Mr. Bush, who is also 
            receiving a deluge of phone calls and letters from some Roman 
            Catholics and religious conservatives. These people contend that 
            using embryos for research is sanctioning the destruction of life 
            and puts the country on a slippery slope that could lead to an even 
            more permissive approach to abortion.
            "On the passion meter, this is as high as it gets," one 
            administration official said.
            Administration officials said that Mr. Bush had agonized over what 
            to do. One said that for several weeks Mr. Bush had brought the 
            issue up almost daily, even in meetings not directly related to the 
            topic.
            "It's come up in economic policy meetings," the official said. "He 
            says, `Hold on,' and we get back into stem cell. He has talked about 
            the issue an awful lot. He has been studying this issue 
            comprehensively."
            And yet, several aides said, Mr. Bush has not given clear signals 
            about what he plans to do. One aide said that Mr. Bush concluded a 
            recent meeting on the subject by saying, "I'll make up my mind when 
            I make up my mind — and then I'll tell you."
            While people close to Mr. Bush are reluctant to talk about his 
            deliberations, several said they were certain he knew that many 
            people he respected had personal or family medical histories that 
            inclined them to favor stem cell research.
            Those people include, for example, former Senator Connie Mack, a 
            Florida Republican, who was seriously considered as a running mate 
            for Mr. Bush in the 2000 election. Mr. Mack, a Roman Catholic who 
            opposes abortion, has been an ardent advocate for embryonic stem 
            cell research, a position informed by his family's experiences with 
            cancer. Both of his parents, his wife, his younger brother, his 
            daughter and he himself have battled various forms of cancer.
            He is just one of many current and former members of Congress who 
            have personal connections or family stories that have heightened 
            their awareness of what could be gained from the research and who 
            have come to support it despite an opposition to abortion.
            Mr. Card has been quiet on the issue publicly. In the past, he has 
            been active with the American Parkinson's Disease Association. Jim 
            Maurer, the former president of the Massachusetts chapter of that 
            group, said that Mr. Card served on his board of directors in 1996 
            and 1997 and "was really good about letting us use his name." 
            Mr. Card, who is from Massachusetts, was transportation secretary in 
            the first Bush administration.
            Mr. Maurer, 69, who has had Parkinson's for more than a decade, 
            recalled meeting Mr. Card when his father was alive and a 
            participant in support groups for people with Parkinson's and their 
            family members.
            "His mother and father were very diligent about attending," Mr. 
            Maurer said. "His dad was quite advanced for many years. He was in a 
            wheelchair. I can remember his mother pushing that wheelchair, even 
            in the middle of winter."
            Mr. Maurer said he kept in touch with Mr. Card but was reluctant to 
            push him on stem cell research.
            "I know that he's in touch with the facts," Mr. Maurer said.
            Ari Fleischer, the White House press secretary, said that Mr. Card 
            usually deferred in meetings to the administration's designated 
            experts on a given subject.
            "Andy likes for the people in charge of the issue to lead the 
            briefing," Mr. Fleischer said.
            
             
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